Meet Nicole!

I posted a while back about my friend Nicole who lives in Nashville and her comments on Nashville TV about Obama Care. I love Nicole ~ she and I have shared our MS stories for the past 5 years, and as I mentioned before she is beautiful, talented and creative. She has volunteered to share her voice with me here on this blog ~ hopefully she will become a regular contributor. Welcome girl!

It’s the Mental Game that is Important in our Fight

If I’m honest I knew what it was when I woke up 5 years ago with numbness in my hands and feet.  Denial is a powerful thing.  I am an event planner and was in the middle of the biggest event I do all year.  The day of the event was finally here and by the end  I couldn’t even stand.  I told everyone, including myself, that I was so stressed over the event that I had caused this reaction in my body.

I went home, got a good night sleep and convinced myself that if I just resumed my normal schedule that day I would be just fine. That didn’t work out so well… I made it as far as the parking lot of the Starbucks.  There is just something about lying on hard, hot asphalt, staring at the sky that makes you confront your situation and melts that denial right away.

So, the MRI told me what I knew.  I had MS.  The same disease my mother was diagnosed with while training for a triathlon in the mid 80’s.  This disease had left my mom paralyzed in a wheelchair and a shadow of her former self.  I was scared.  Very scared.  I had what they called a “massive onset” which resulted in some paralysis and oh…. I went blind.

It is my personality to fight till I get what I want and what I wanted was the head of the MS department at Vanderbilt to be my doctor.  He was not taking new patients.  When he eventually took me he told me the best advice I have had this whole time.  “You’re biggest challenge is going to be mental…. not physical.”  See, I had seen the movie of my mom’s rapid decline and just knew that was the fate that awaited me.

Well, here we are 5 years later and I can walk, talk, type and SEE.  I am responding well to Beta Seron, which ironically my mom participated in the clinical trials for but was too far gone to be helped.

I challenge everyone with MS to heed Dr. Moses words…your biggest challenge is mental not physical.

You can do it!  You are doing great and the best you can!  Slow and steady wins the race!

Nicole Cochran, January 30, 2011

Can You See Me, Now!?

I really lucked out in the family department. My immediate family is loving, supportive and most importantly, really funny. My brother Dave has a rapier wit, my sister Lisa has a flair for the absurd, and if you look up witty in the dictionary, you might see a picture of my mom Jeannie. Suffice it to say we are all corny, smart, sassy, clever, somewhat droll and more than a little irreverent.

Well, the apple didn’t fall far from the family tree, and my 4 nephews and 2 daughters are all pretty darn funny by their own merits. In particular, my baby Elizabeth is one of those people that can get you to snort liquid out of your nose with one single look. She is down right hilarious and her timing is excellent.

On my two Dr. visits earlier this week, I was enormously pleased to find that Liza had changed her work schedule so she could accompany me. We grabbed a coffee and headed over to USC for an ultrasound of my kidneys and bladder (a precursor to the actual Botox treatment which will be taking place in 3 weeks). We took an LA Times crossword puzzle book to pass the time and had a great time laughing over words we made up and just generally being silly as we usually are.

After a delicious lunch at an outside cafe in Pasadena, we headed over to see to my neurologist Dr. S. Now, I adore Dr. S. I keep going to him despite the fact that he is the absolute worst when it comes to waiting. This time, it took us over 2 hours past my scheduled appointment time before we got in to see him. We had our usual discussion about my hirple, how the solu-medrol worked and so on; I did my tip toe walk up and back and then we moved into the exam room. Liza of course came in with me, that’s the point of her coming along after all.

First thing she does when the door is closed is start nosing around. While I’m getting into a gown, she is picking things up and looking at them. She finds these glasses sitting on the counter and immediately puts them on. I’m cracking up, just a Dr. S. comes in. He begins to do the exam and fortunately for me I can’t see Elizabeth who is behind his back. Wearing the glasses. Taking pictures.

Once the exam is over Dr. S. retreats to his office and tells us to join him once I’m put back together. He has no idea that there is NO WAY I can put myself together after Liza shows me the pictures of her in the glasses. We manage to bumble back to his office where he prescribes me a new medication called Baclofen to aid in my walking.  I was biting the inside of my cheek trying hard not to laugh and missed the instructions on how to take the medication all together.

I gave Dr. S. the URL to this blog. Kind sir, if you are reading this, please forgive our irreverence. Liza remembered the instructions for the meds and we meant you no disrespect. You have to admit though, she looks pretty damn funny in these glasses.