Newly Diagnosed

I’ve been here in California for the last week and will be coming back regularly for the next few months, so if my posts are sporadic that’s why. I’m back doing Dr appointments with both Dr G. and Dr S. and will report on those visits soon.

Elizabeth took the day off from driving the ambulance to spend the day with me (bless her heart ~ it makes these Dr. days so much more fun) and during the course of the day she told me her friend’s girlfriend was just diagnosed with MS last week. She is in her mid 20s. Her friend (let’s call him Cody as I can’t remember his name) told Liza he was so scared, and she said to him “you’ve been reading everything you can find, huh”. He confirmed they’ve both been Googling like mad.

It’s a fine line. Newly diagnosed, you want to find out everything you can and education is critical in dealing with your new condition. I did the same thing and read books like the catheterizing MonSter ladies book and it terrified me more than I already was.

I’m glad I don’t travel much anymore because the hype about bed bugs alone is enough to keep me from ever sleeping anywhere ever again. I’ve already burned my suitcase, all my coats and my bed because as the news reports, they are everywhere! I’ve started brushing my teeth 4 times per day for 2 minutes each time as apparently bad gums will give me a heart attack. I need to consider going braless as my bra is restricting my lymph nodes and raising my risk of breast cancer.

You get the idea. For the newly diagnosed I don’t even recommend reading this blog. The whole bladder Botox thing, the scooter, the steroid infusions…it is all scary shit! When it comes in a natural progression you’ll discover how resilient and strong you really are.

My advice: take a deep breath, read at a gentle pace (unfortunately, you’re in it for the long haul…plenty of time to research), process slowly, go have a long sleep, and don’t let the bedbugs bite.

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